The Special Health Services Unit, Newborn Screening and Follow-up (NBS FU) program is seeking a Newborn Screening Long-term Follow-up (NBS LTFU) Consultant to provide support regarding the Health Resources and Services Administration (HRSA)-24-052 Cooperative Newborn Screening System Priorities Program (NBS Co-Propel) Grant. The State NBS FU program is seeking a NBS FU Consultant to provide the following: Assist with the implementation of the Newborn Screening (NBS) project to meet the goals of the HRSA-24-052 Grant. Provide leadership, organization, and expertise around continuous quality improvement (CQI) efforts, data analysis, and evaluation specific to the NBS program. Conduct NBS family and provider focus groups, analyze data, and report findings. Assist with gap analysis and the creation of NBS educational materials for new parents, providers, midwives, and doulas. Identify and evaluate gaps and need for specific education by NBS condition. Evaluate content for creation of Long-Term Follow-Up (LTFU) educational video for parents of children newly diagnosed with a condition. Attend routine virtual team meetings and in person meetings as needed. The contractor must have at least five years of experience in working with state NBS programs and Part C Early Intervention programs and have experience working in electronic health records.
